Open Data
Open data is data anyone can access, use and redistribute, subject at most to attribution and share-alike. In health, the useful question is not whether to be open but which data can be opened, at what granularity, and with what safeguards.
What "open" requires
- Available — retrievable in bulk, at no more than reproduction cost
- Machine-readable — CSV, JSON or Parquet, not a PDF of a table
- Openly licensed — explicit reuse rights, stated on the dataset
- Findable — catalogued, with a stable URL
- Documented — a data dictionary, not just column headers
A spreadsheet on a ministry website with no licence and no schema meets the letter of "published" and none of the intent.
What can be opened
Usually safe to open:
- Facility registries — locations, services, ownership
- Aggregate service statistics above a defined suppression threshold
- Health workforce counts by cadre and administrative level
- Commodity availability and stock-out rates
- Budget and expenditure data
- Metadata: indicator definitions, code lists, reporting calendars
Requires careful handling or should not be opened:
- Any individual-level clinical record
- Small-area data on stigmatised conditions
- Data that identifies individual providers by outcome
- Cells small enough to identify a person
Disclosure risk
Aggregate does not mean anonymous. Risks to manage:
- Small cells. Adopt a suppression threshold and apply it consistently.
- Differencing. Two publications that overlap can reveal a suppressed cell by subtraction; suppress secondary cells too.
- Linkage. Combining an open dataset with another source can re-identify individuals even when neither does alone.
See health data for de-identification technique and data governance for who authorises release.
Publishing well
- Stable identifiers. Facility codes that change between releases break every downstream user.
- Versioned releases with a changelog; never silently overwrite.
- A data dictionary giving definition, unit, period and source for each field.
- Documented provenance — which system, extracted when, covering what.
- Known limitations stated up front. Users will find them anyway; stating them preserves trust.
- An API as well as bulk files, when there is demand for both.
Related
- Health data
- Data governance
- Global Public Goods — open, reusable digital health building blocks
- GDPR